42 U.S.C. § 300mm–51 — Research regarding certain health conditions related to September 11 terrorist attacks

1. (a)In generalThe WTC Program Administrator shall conduct or support—The Administrator may provide such support through continuation and expansion of research that was initiated before January 2, 2011, and through the World Trade Center Health Registry (referred to in section 300mm–52 of this title), through a Clinical Center of Excellence, or through a Data Center.
   1. (1)research on physical and mental health conditions that may be related to the September 11, 2001, terrorist attacks;
   2. (2)research on diagnosing WTC-related health conditions, in the case of conditions for which there has been diagnostic uncertainty; and
   3. (3)research on treating WTC-related health conditions, in the case of conditions for which there has been treatment uncertainty.
2. (b)Types of researchThe research under subsection (a)(1) shall include epidemiologic and other research studies on WTC-related health conditions or emerging conditions—
   1. (1)among enrolled WTC responders and certified-eligible WTC survivors under treatment and individuals who were exposed within a geographic area related to the September 11, 2001, terrorist attacks in a manner similar to the exposure within such geographic area experienced by individuals meeting the eligibility criteria under section 300mm–21(a)(2) or 300mm–31(a)(1)(B) of this title; and
   2. (2)in sampled populations outside the New York City disaster area in Manhattan as far north as 14th Street and in Brooklyn, along with control populations, to identify potential for long-term adverse health effects in less exposed populations.
3. (c)Research cohort for emerging health impacts on youth
   1. (1)In generalThe WTC Program Administrator, in consultation with the Secretary of Education, shall establish a research cohort of sufficient size to conduct future research studies on the health and educational impacts of exposure to airborne toxins, or any other hazard or adverse condition, resulting from the September 11, 2001, terrorist attacks, including on the population of individuals who were 21 years of age or younger at the time of exposure, including such individuals who are screening-eligible WTC survivors or certified-eligible WTC survivors.
   2. (2)Populations studiedThe research cohort under paragraph (1) may include—
      1. (A)individuals who, on September 11, 2001, were 21 years of age or younger and were—
         1. (i)outside the New York City disaster area; and
         2. (ii)in—
            1. (I)the area of Manhattan not further north than 14th Street; or
            2. (II)Brooklyn; and
      2. (B)control populations, including populations of individuals who, on September 11, 2001, were 21 years of age or younger.
4. (d)ConsultationThe WTC Program Administrator shall carry out this section in consultation with the WTC Scientific/Technical Advisory Committee.
5. (e)Application of privacy and human subject protectionsThe privacy and human subject protections applicable to research conducted under this section shall not be less than such protections applicable to research conducted or funded by the Department of Health and Human Services.